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Friday, 17 March 2017

Wheelchair Fashion: Lilac Snowdrops

I believe in clothes much as Audrey Hepburn believed in pink & Marilyn Monroe believed in shoes. (Doesn't that sound good, doesn't mean anything but it sounds good lol.)
Seriously though I believe that the right clothes at the right time can change the world just a little bit. My world anyway & I have an 'emergency dress fund' precisely for those kinds of clothes.
I tend to be quite practical with my clothes choices, vintage style clothes can be really expensive so I can't just buy whatever looks cute. I pick separates over dresses every time because they can be worn multiple ways & I only buy anything if I can think of 3 ways I can wear it with the pieces I already have. Whilst this is sensible & means that most of the things in my wardrobe work well together, it can be a little joyless. I can't count how many dresses I adored I've had to let pass because it's not really the practical choice.
That's where the 'emergency dress fund' came in. Once a season & no more I can pull the emergency dress fund card & buy some ridiculous dress that I can't live without. Surprisingly I've only bought 3 so far. Even more surprisingly they have all become staples for days when I can't stand to wear pyjamas one second longer.

This dress is the 3rd 'emergency fund' dress I've gotten (1st & 2nd) & it may be my favourite. It's definitely the most obviously me. I mean all those pretty lilacs? I literally have a tattoo of lilacs! It's my favourite flower 100%. Plus there is all the lovely deep purple roses & the great blues...this print could have been made for me, it contains all my favourite colours. It's got that great timeless English rose floral print type look. I could have been wearing a dress with a print like this going back to the Georgian period. It probably wouldn't have been in purple but historical accuracy is not really the point, I'm pretty sure I wouldn't have been tattooed, in a wheelchair or showing all this much leg either. Little details.

So dress, it's a Pinup Girl Clothing Jenny Dress (capitalised with good reason, it's a title with heritage & dignity lol).
The dress cost $168 (you can see why it was an emergency fund dress...) & comes in XS-4XL. I am EXACTLY in between a 2XL & a 3XL in the Jenny Dress (the 2XL being a 36 inch waist & the 3XL being a 40 inch waist). The last jenny dress I got was in the 3XL....possibly a mistake. SUPER comfortable & great for casual wear without shape wear but it doesn't look quite right otherwise. I got this one in the 2XL, 100% by accident (I'm a 2XL in most Pinup Girl Clothing items so I didn't even think to check the size guide). I'm so pleased I did mess up though because this dress is exactly the right size, especially with a tightly laced corset (I get my corsets from Orchard Corsets & I wore a mesh one under this dress because it was the only one I had that I could zip my dress over...).

So, the jenny dress. I am a massive fan of the shape of the Jenny skirt; they are pretty much what converted me to the whole pin-up/vintage life. That should mean that I am an equally big fan of jenny dresses but I have to say I'm not 100% sold on them. They are lovely dresses, don't get me wrong, I just have a few quibbles.
My biggest quibble is the zip in the back, how the beep are people supposed to get dressed by themselves if they can't even reach the zip? It's weird, especially as hidden zips in the side are so common place now.

My next big quibble is the waist. I'm not a true hourglass anymore but I do have quite a small waist in proportion to everything else & I look best when my skirts sit on that waist (it's why I wear statement belts & cropped cardigans & big retro style's kind of my signature look). The jenny dress has quite a long bodice, dropping a good inch & a half below my natural waist. It takes some creative accessorising to make my proportions look right, worth it but slightly annoying.
(My mum tried on the dress & the waist hits her perfectly, so I guess it's a body shape thing.)

My only other quibble is the price. Jenny dresses are pricey, depending on your budget I would say they can be worth it but they are decidedly not cheap, especially after postage to the UK.

On the other hand I am totally in love with this dress & have worn it 3 times already (which might not seem like a lot but I normally only wear non-pj clothes 3 times a month maximum, you can see how this is more than is normal for me). I would totally recommend it if you have a lot of weddings to go to this summer, or if you just really adore a good floral print. It's one of those dresses you have in your wardrobe that works for any occasion you know?

Plus I got loads of compliments on it when I was out taking pictures & I almost never do, at most one person will say something. This time I was complimented three times! It's just that kind of dress.

P.S. How nice are the snow drops? Snowdrops are one of my favourite spring flowers & it's so unusual to see more than one or two at a time!

P.P.S. Notes from my Mum. "The pockets are really handy and it looks good even on a fat old lady."

Friday, 3 March 2017

Wheelchair Fashion: It's winter till I say so

It was SO GOOD to get out to take these pictures! I have been flaring really badly & until earlier this week I hadn't left my room in almost a fortnight. Being able to be outside in the sunshine & fresh air was pretty amazing. It was possibly very slightly reckless of me but it was totally necessary right then, like how winter festivals aren't practical but were historically necessary for people staying happy & sane...
These aren't the best pictures & I didn't get many of them but right now this feels like the best outfit post I've ever done ^^.

Weird outfit to post in the first week in March but hear me out. First, I missed most of winter being trapped in my room & I still had this top to wear, second, it's still the last week of February really and lastly...does it really count as spring if the temperature is below 5゜C? I'm pretty sure it doesn't. Although honestly I remember springs where it didn't get above that until nearly May. My logic may be flawed here.

Regardless I had this top to wear & it was too cute not to share.

This is one of the heart of haute Lily top (currently available in 8 colours, $40-$42 sizes XS-3XL). I ADORE these tops - my white one is a total staple although this one may take its place, especially in winter.
There are lots of reasons why I love these tops so I thought I'd list a few...
  • They are super comfortable - being a stretch fabric means that they are so much more comfortable than the more structured pin-up girl clothing tops I wear a lot
  • They are versatile - they can be dressed up or down, I gave one to my mum & it works just as well with the casual jeans & t-shirt look she rocks as it does with my retro look
  • They are amazing quality - they wash & iron really well & despite being a stretch fabric the boob area never gets that deflated balloon look....
  • That bow!
Literally the only thing I don't like about them is that - because I am insecure about my arms - when I look at pictures of myself in this top all I can see is the flabbiness of my arms. But again, that's my issue & nothing to do with the top.

I'm wearing the skirt from the last post (it is so cute!). Normally I don't like skirts this long in the wheelchair, for a whole bunch of reasons including them getting caught in my wheels & then making me look like I'm wearing a maxi skirt, but this one flirts with the line of being too something about the fabric manages to make it not look as 70's as some other skirts I've worn that were this length.

When do you feel spring starts? Also do you think I should dye my hair again this spring/summer? I have the past few years but I'm not sure this year...

Friday, 10 February 2017

Wheelchair Fashion: Rockabilly Cat Lady

I hope you don't mind but my cat kind of crashed the party a little for this ootd post. Of course you don't mind, she is totally adorable & cats do rule the internet after all. Of the many MANY things that prevented me from posting over January getting Renata (my cat) was one of them.
The last time I had a cat I was maybe 3? I don't remember her at all but I have been pestering my mum for a pet ever since I can remember. There were always so many good reasons why we couldn't get one that it didn't seem like it would ever be possible.... I guess I finally wore her down though because last month we went to the RSPCA & adopted Renata (formerly Lulu). She is a 9 year old former stray with a food allergy & the sweetest, most cuddly cat ever. She will literally snuggle up to anyone who has a lap spare & spends most of her day on the end of my footstool pushing me off 😊

I get the feeling I might be talking a little bit too much about a cat in what is supposed to be a wheelchair fashion post...that isn't even in a wheelchair. There are two very good reasons for that 1) it was -2°C & raining & 2) my chair is broken again. Also inside I can put my pjs back on as soon as I've finished. Which I did.

Not that I didn't like this outfit, super cute & really comfortable for being real people clothes, I especially like the jumper (collectif clothing £14.75 on sale, usually sizes 8-22). Now I usually don't pick things that aren't a deep scoop neck because I realised in high school that high necklines make me look like my boobs start at my chin & end at my waist (not a flattering look) & that I generally can't pull them off (otherwise I would have some of the miss fortune knitted tops). But 2016 was a year where I took a whole load of fashion risks, totally changing my style being one of them) & I'm trying to keep that doing in 2017 so I bought the top, it was on sale anyway so I wasn't loosing anything...I seriously love it. Cute top, cute print, flattering cut. Can be dressed down, can be dressed up. Light enough to layer but warm enough to wear on it's own. Would work in all seasons, especially spring/English summer though, you ever notice how nautical is in every year?

The skirt is also on sale btw, although I got it at full price. You know, usually I would regret that but I have gotten so much wear out of this already that I can't be mad about it you know? It's quite a long skirt, not really the length I would choose for wearing in my wheelchair usually, but it's not too long if you're not sitting down. The fabric is nice & heavy, it's cute with a petticoat & that sparkle is EVERYTHING! I don't particularly like the belt but that's a personal preference thing, not a problem with the belt.
Plus the zip is good, nice lining & the cut with the cool panelling....awesome.

The headband/scarf/whatever thing is also from collectif clothing. It's my first one, I've never had anything like it so I don't know how it stacks up to any others but it's nice & wide, long & very soft which makes it pretty multi-purpose. You can tie the bow any which way you like & I have to rate it just for that. It's a good introduction to the whole hair bow thing if nothing else.
I am totally hooked, I already ordered a whole bunch more on etsy.

So you don't think the whole look is from collectif clothing, the belt is from modcloth (too old for a link I'm afraid). I'm truly not sponsored by collectif clothing, their store is just in the UK & has a good range of well made clothing so when I am being brave I tend to pick them as I can always return something if I hate it. Only one return so far & it was my mistake not anything wrong with the item.

How was your January? Do you have any pets & any advice to a new pet servant owner?

P.S. I call this 'wheelchair fashion' because it is what I would have worn in my wheelchair if I'd been able to use it.

Friday, 16 December 2016

Wheelchair Fashion: Only 8 more Sleeps till Christmas...

The festive season is very low key in my family. The house really isn't big enough for a Christmas Tree - we used to have one when we were kids that went up Christmas Eve & came down Boxing Day - & we don't really do any other decorating. That's not that we don't celebrate in our own way but it's more 'Happy Holidays' than 'MERRY CHRISTMAS' you know? Plus I'm always extra sick over Christmas so we are even quieter than we were before I got sick.
The one, over the top, glitzy, 'MERRY CHRISTMAS' thing I go nuts for is the festive clothes. The festive season is the one time of the year where you can wear the most fun, sparkly, glamorous clothes. Or at least buy them, put them in your wardrobe & never wear them. I have totally done that, like more than once.

Christmas fashion being the best part of the whole thing (in my opinion) I was really happy to treat myself to this outfit. I had thought it was a massive splurge & that none of the pieces would be re-wearable but I actually really love them, despite their quirks.
The top is from Collectif Clothing (£53.50, UK sizes 6-22. I chose an 18). I seriously love this top, it's comfortable, easy to get on & it feels like I'm wearing shapewear even if I'm not. Plus that neck line is incredible, I wouldn't have thought it would work for me but it is super cute & is making me re-think what looks good on me.
It has a few quirks though. Firstly, it hates boobs. Seriously. I had 4 safety pins on this & it still kept moving around. It was literally impossible to keep the shawl bit at the back down without the safety pins, I was thinking of adding masking tape at one point. Now this may be because I got it smaller than my usual size based off of the size guide on Top but I'm not sure that it would have looked as good if I'd gotten it any bigger though.
Also the zip is a bit tricky, after the first few times it stopped going up over the area where the ruching starts. That's pretty standard. waistbands & ruching are really hard to set a zip into but it's a little annoying. It's a pay off though, I'm happy the zip is in the side, even if it means that it doesn't totally unzip...
Don't let that put you off though, it is totally possible to hide the safety pins. Plus, I got my younger brother to try it on to see how it would work on someone with no curves. I was convinced it wouldn't work but it was AMAZING. This top creates curves, it's legitimately magic. I recommend it to anyone wanting something sparkly to wear during the festive season.

The skirt. Legitimately the best skirt I've bought all year, if not the best item of clothing I got all year.
The skirt is also from Collectif Clothing (£69 UK sizes 6-22, I wear a 22). The fullness is amazing, the fabric is stunning & there is a light layer of netting inside it that acts as a very thin petticoat. It's thin enough that you could wear a petticoat if you wanted but enough that it gives the skirt shape.
My only problem is the length of the skirt. In my chair it's not too bad, & as most electric chairs are even taller than mine it probably wouldn't be a problem for them either, but it might be one to avoid if you use a manual chair simply because it's so long & full.

The belt is from Modcloth (£29.99, sizes S/M & M/L, available in 4 colours) it's actually slightly too small for me but I extend my belts with ribbon when they are too small, yet another quirk of this outfit. The tights & shoes are old, M&S & accessorize respectively I think.

Oh & the necklace is from a small independent sell that doesn't sell online unfortunately because this is really cool, it's both a necklace & a broach making it multipurpose. It's a piece of coniferous tree (I think a kind of fir?) that has been coated in silver. Very festive no?

What's your idea of festive fashion? How do you celebrate Christmas?

Happy Holidays everyone. 

Friday, 2 December 2016

Wheelchair Fashion: Freezing in Wonderland

Why do I persist on taking photos in the freezing cold? I don't look happy & it makes it hard to get good photos....mostly because the shivering makes it hard to focus on posing...

I have been wanting to take photos in this skirt for AGES! It's really, really pretty but autumn was incredibly beautiful this year so it kept getting pushed back & now it is way too cold to be wearing this outfit. I mean it's got to be pretty bad when the fleece lined ballet pumps are the warmest part of your outfit... I'm thinking of investing in a pair of cute thermals for next time.

 I am totally incapable of making sentences at the moment. I wish I could explain how much I love this skirt - it's probably the only wonderland themed item of clothing I have ever fallen in love with - but that would involve my brain making sentences.
It's a lovely 50's style skirt, not a true circle but it is full enough that petticoats still work underneath it. The button came off the first time I wore it but it's easy to sew back on & I'm pretty sure it was my fault. Plus the pockets are good & the waist band is a nice width.
I sound really boring but it really is pretty. I got mine on Unique (XS-4XL, $72, I wear a 3XL) but it's also available on deadly is the female.

The top is from Heart of Haute (XS-3XL, $40, I wear a 2XL) & is one of my favourite pieces from last year. It's such a good basic, coming in such a lovely range of's also SUPER comfortable since it's in a lovely soft, stretchy fabric. Very different to the Pin Up Girl Clothing tops that I usually wear (very structured with only a little stretch).
The belt is years old, from a Spring/Summer Hell Bunny collection. I wish I could find more belts this width, they seem to have gone sadly out of fashion which is awkward for me as they look best on me. I've been wearing belts this width for 7 years, random but true. It's pretty much my signature, the only part of my style that hasn't really changed at all...seriously in that time I have gone from wearing leggings, plaid shirts & long vest tops to wearing a LOT of black to the vintage style I wear today...

Gosh it was difficult to focus whilst reading, or more accurately trying not to read. It's hard to avoid when you are holding one of your favourite ever books... (I wanted to be holding 'Alice in Wonderland' but I actually don't have a copy & the copy of 'Through the Looking Glass' was so worn that I didn't want to expose it to the elements, or the rough & tumble of my handbag. This is actually one of my much loved Eva Ibbotson romance novels).

Thank you for bearing with me through this very incoherent post. I will try to be better next time.

Friday, 18 November 2016

Wheelchair Fashion: Hurricane Plaid

Autumn/Winter weather is kind of crazy in England, or at least in Yorkshire it is. It gets cold & grey & very very wet. This makes it tricky to get photos, especially as I can't cope with going out on a weekend. (P.S. Did you know that the North of England closes 90% of it's gardens & stately homes during the week in winter? It's super frustrating.)
Anyway the last two weeks I have been waiting & waiting to have sunshine....or at least no rain. Today I managed it & boy was it fun, I swear I saw boat row by in the air & a mean school teacher cycle past as she turned in to a witch.

A.K.A. it's was really windy. Like ridiculously windy. And there was a torrential downpour part way through. Also the temperatures were sub-artic & now I am just feeling sorry for myself. It made for beautiful photos but a very sore & uncomfortable body, I am however thinking of getting a wind machine. Hair-o-graphy doesn't work when you have a pixie cut but I've invented skirt-o-graphy instead. I'm expecting to see it on the next season of RuPaul's drag race.
As I am writing this I realised that binge watching 3 seasons of Gilmore girls over the past 5 days has definitely influenced the way I am writing this post. I have a tendancy to take on the personality of my favourite female characters when I binge watch TV, I used to watch Veronica Mars in high school for this exact reason (I become a bad ass when I watch Veronica Mars, I become Lorelai meets Lane meets Paris when I watch Gilmore Girls for too long). So if this post is weird, that right there is your reason.

I'm just lucky the photos turned out so well, it's 100% down to the dress. It's from Miss Candyfloss (107.50 Euros, I'm a size 3XL), mostly out of stock there but it's also available from Top VintageDeadly is the Female (deadly is the female is your best bet).
Nothing about this dress should have worked for me, it's quite high necked for me (I have too much boob for high necklines), the plaid looks really dark indoors & the way the shoulders are set makes me look microscopically broader in the shoulders which doesn't seem like a big deal but when you are already built like a rugby player...quite honestly I was freaking out when it arrived. I also made the rookie mistake of trying it on without shapewear, I was convinced it looked awful.

It's actually stunning. Firstly it has an almost true vintage feel; no real 40s/50s clothing comes up to my size, it just doesn't happen, so items like this that look & feel like they are really vintage are real godsends. Secondly the fabric is super soft, it has a felt meets real plaid texture but much finer woven than either of those, it's feels almost wooly which is perfect for a winter dress. Thirdly my petticoat fits underneath it nicely, it fits in my wheelchair & the skirt doesn't get in my way. Fourthly there is a side zip! Praises & halleluiah. Whilst it is not possible for me to get dressed by myself, I like the idea & that zip gives me the illusion that if I wasn't too sick to stand up long enough to get dressed without help I would be able to put this on without anyone else zipping me up. That illusion is nice.

Seriously if this dress had pockets it would be the best Autumn/Winter dress I have ever owned.
Actually it's already the best Autumn/Winter dress I have ever owned, I just like things to have pockets.
Plus it is one of those dresses you can wear for absolutely anything as it can be dressed up & down.
There are seriously so many good things about this dress I could go on for ever.

Also I want to mention my wheelchair is finally electric again!!! The wheelchair it's self isn't fixed but they lent me the part I need until my part is fixed, if that makes any sense. I have never been happier to go out, possibly ever, than the first time I went out after getting my controller back. I'm pretty sure my mum was even happier lol.

Friday, 4 November 2016

Wheelchair Fashion: The Spirit of Autumn

The electronics on my wheelchair are still out of commission (they've found the problem though so hopefully I'll get it back soon) so I've been stuck in the house a lot. Unfortunately we have also ben having the roof fixed & it's driving me insane! Seriously, how much hammering does fixing the roof take? Also why do people feel the need to set off fireworks during the day? Or ever? I am getting the worst headaches...

Anyway, all of this combined meant that when I had an opportunity to leave the house I did so as fast as possible. As in it took me more than a week. More like two weeks. Eh, that's fast for me.

This is such a cool autumn look in my opinion; you can't really beat a good warm toned orange & red type look for autumn but this very different colour palette looks so fresh & yet warm. It's kind of like a Summer/Autumn transitional look but better. It's made by the skirt, the skirt is totally the best part of the whole outfit...
It's from lindy bop & whilst it's not the same quality as some of the other skirts I have, the print totally makes up for it. It also doesn't work quite as well with my, it's still totally cute & it looks adorable with my pinup girl clothing pink polka dot top (limited edition & no longer available) & this olive green cardigan (sizes XS-4XL $29.99).

Unfortunately the skirt is no longer available. I should probably check these things before I take outfit photos...

(My obligatory throw leaves in the air autumn photo. There must be a knack to this cause I was rubbish at it lol)
I don't want to talk too much about the skirt or the top since they are out of stock & unlikely to come back in. I'm pretty sure they changed the shape of the pin up girl clothing peasant top & it doesn't sit quite right on me anymore. It could just be this one but I'm nervous to buy any others...
The fabric on this skirt is also super slippery & kept sliding around, plus I was half way in between two sizes which didn't help....
Also I got the cardigan in my actual size (a 2XL) & it is way too big on me, I should have got it in a 1XL....basically this outfit was a comedy of errors that only worked on pure luck & stubbornness apparently :)

The necklace is another etsy find from ages ago, I am incredibly marginally obsessed with trees. I feel like trees are magic, I never feel like I am really breathing unless I am around trees & I could swear that trees are more aware than we give them credit for. It might be a little crazy but when I dot sick & couldn't go out as much I got to feel cut off. I live in a terraced house in an area where the only greenery is the tiny amount we can grow in our yard. There isn't a tree anywhere within sight, even when I used to be in the attic I couldn't see any trees. So I started buying these necklaces, I have quite a collection at this point & this is one of my favourites :)
The lady who makes them is on etsy, the shop isn't running right now. It's worth waiting but if you can't there are lots of imitations around :)

This is the photo the name of the post comes from (the one above the bit of text). When we were out & my mum was taking photos she said something along the lines of "You look like the spirit of autumn."
My mum is the best, for every ten times she manages to say the exact wrong thing (accidentally & because she has no tact) there is at least one time where she says something really awesome that makes me feel kick ass for the rest of the week. This was totally one of the second times & it was an awesome name for a blog post.

Honestly I think the last post was more a spirit of autumn post but it's still a good name to use. Plus autumn is 100% the season I would like to be the spirit of.

What's your favourite autumn colour palette? Do you have one? Do you believe in magic or that anything specific has magic like properties? If you were the spirit of a season which season would you pick? And how on earth does the throwing leaves in the air picture work? :)

Thursday, 20 October 2016

Wheelchair Fashion: The Golden Leaves of Lothlorien

Of the two in-accuracies in the title I'm not sure if I'm more bummed about these picture not really being in a wheelchair or not really being in Lothlorien...
Actually that's not true. I'm more bummed about not being in my wheelchair, especially after taking these photos. I HATE mobility scooters; why is the suspension always terrible & why is the turning so unnecessarily confusing? It's weird though, people notice me more in a mobility scooter than in my wheelchair... I still hate the thrice cursed things.

My wheelchair is out of commission atm & I feel like I lost a limb & an old friend all in one. Once it's repaired I should probably get a proper name for her, I've had her for 3 years now I think she's earned one. Especially if they don't have to replace the main control unit 'cause that would totally suck.

I was determined to get out to take outfit photos despite not having my chair. I mean, technically, I have the body just not the electrical part so I can use the manual wheels like I have in the past but my mum refuses to push me more than a few metres (especially if I'm going to do outfit photos) because I'm apparently 'fussy' which I don't think is that unreasonable but w/ only one of the breaks works for the manual wheels so it's not really practical when taking outfit photos... Where was I?

Right, I was determined to take outfit photos. Autumn doesn't last that long, especially in the north of England (it's pretty much just October) & it rains like half the time so there is a very small window of time & since Autumn outfits are the most fun it's always kind of a rush to get a few taken. So earlier this week I braved mobility scooter hell (it's not literally hell but it really did f*ck up my hips) & went out to Harlow Carr Gardens near Harrogate to get my pictures taken.

Quick aside, if you are in Yorkshire & you want a nice, spoonie friendly day out Harlow Carr is pretty good. You can book mobility scooters, there is a wheelchair accessible path & the café is a Betty's so pretty awesome. The café can get pretty loud & the Betty's shop is almost impossible to navigate around in a wheelchair but there is an outdoor betty's in the gardens which doesn't tend to get so loud (less selection though) & you can buy most stuff from the shop if you have someone with you willing to brave the queues...

I am so in love with this outfit, every part of it worked so perfectly :) I ordered the cardigan to replace an old & much loved jumper in almost the exact same colour (the only shade of orange I can wear). I was hoping it would be okay but it's actually magic. Seriously. I think it's the cut; normally I find the neckline of cardigans to be too boxy but this one is just stunning! I think I'm going to have to get it in S-every colour honestly. It's the Charter School Cardigan in Ginger from Modcloth (XS-4XL, $39.99) & seems to run true to size although I got a 1XL & it totally worked for me so I guess check the size chart... It's also super soft & warm despite being quite thin :)

Other than the cardigan, the rest are wardrobe staples for me. The skirt is the first (& only) pin-up girl clothing skirt I own. I got it from Deadly is the Female last year & was so happy, it's still the best pin-up skirt I own but it was obviously limited edition & unavailable now except in tiny sizes :( I hope they do more prints like this though cause I love them so much :)
The top is also pinup girl clothing, it's the white peasant top & is (thankfully) available all the time (XS-4XL $56). The peasant tops from pinup girl clothing are a total basic in my wardrobe, I think I have 5...

The tights are in the shade conker from M&S (S-XL £2.50), the shoes are my old Burgandy B.A.I.T shoes & the necklace is from THIS etsy seller. I recommend looking at all their stuff because it's really cool :)

What's your favourite season for clothes? Also wheelchair or mobility scooter? And most importantly do you like the new hair colour? lol
Happy autumn everyone.

Friday, 7 October 2016

Spoonie Survival Kit: Spoonie Friendly Bedding

Being a spoonie seems to bleed over into every part of our lives. Things that you barely even thought about as a non-spoonie become complicated, time consuming, often costly decisions. Everything from what to eat to what kind of soap to use or what kind of light bulbs you have in your house become minefields, balancing symptoms with sensitivities, budget & about 100 other things.
When you are in bed you just want to get the best possible rest you can & not deal with anything, which can be hard when your duvet makes you feel like you are being slowly crushed under a matt of (incredibly heavy) nettles...
There are lots of things spoonie friendly bedding needs to do (every spoonie has different requirements) but as the nights are starting to draw in & it gets colder I thought I'd post some of my favourites in the hopes they spare people the sleepless nights I had under my old winter duvet (double bed sized, unbelievably heavy & feather filled! lets just say it did NOT work for me).

Heated Blanket

Last winter, or possibly the winter before (they are all kind of a mush) I found my symptoms had progressed to the point where my winter duvet was too heavy for me to cope with. Unfortunately however it was winter & in Yorkshire that means the nights get COLD. Even wearing layers (including a jumper) to bed I was too cold to sleep.  Luckily for me my mum is something of a genius & thought of using my heated blanket at night (which I have to be honest, totally freaked me out at first). Totally works; when it gets really cold I layer it up with my spring/summer duvet but most of the time I just put it on a low-ish setting & sleep like a baby.
I've had a couple of heated blankets before the one I have now, one of which was really narrow & wouldn't have worked for this at all & one of which was itch-y & died on me (not a great combination). The one that I recommend the most is this one from amazon. It's not the cheapest ever - ~£50 - but it's so big & comfortable I'm totally convinced it's worth it & it's about the same price as good duvet.

Silk Filled Duvet

This is a bit of an extravagance if I'm honest, although I'm not sure how I'd cope without it. You know how I mentioned my mum is a bit of a genius? She's also a bit obsessed with finding things that will make my life easier, which is both a blessing & a curse sometimes :) This is one of her finds & for all that I thought it was just her being crazy when she first mentioned it I'm really glad she found it. Weight of my duvet is a massive issue for me, I'm not sure if that is a common symptom or just something I get but it's something I really struggle with, especially when the surface level pain (pain in my skin rather than pain in muscles or bones or organs w/e) is especially bad & this silk filled duvet is less than half the weight of the duvet I had before & is slightly warmer.
As I said, the duvet is a bit of an extravagance, I have a medium weight single duvet & it cost £145 (which I'm glad I didn't know when my mum bought it cause I would have freaked out) but it really does make a massive difference & it's not at all itchy which is also amazing. Possibly a good thing to ask Father Christmas for? Or do what my brother does & tell everyone you just want money because you are saving up for something & then get this ^^

Sheets & Pillow Cases

I wish I could tell you guys what kind of fabric would not trigger your touch sensitivity but unfortunately I'm pretty sure that depends on your body. My brother has dermographia (his body makes too much histamine & he gets unbelievably itchy) & prefers jersey cotton bedding. I'm mostly okay as long as my bedding is cotton although I have silk pillowcases for a number of reasons (silk is kinder to your skin & hair, but I also used to get rashes & spots under my skin when I uses cotton pillowcases that I don't get anymore & it doesn't burn even on really bad days).

I have to include my bottom sheet, another one of my mum's finds, mostly because it saves me from throttling my mum. I have a profiling bed (one of the only house adaptations the council could help me with) & I tend to toss & turn a lot in my sleep - I did before I got sick but I'm a LOT worse now - & most bottom sheets elastic can't keep them in place under that kind of stress. I don't really care but it really bugs my mum. I'd be laying in bed, barely able to move & my mum would start fidgeting with the bottom sheet, trying to get it tucked back under the mattress. The bottom sheet I currently have seems to hold up a lot better & is very comfortable (which is always a bonus).

Sorry for mentioning my mum so much but things like this are where she tends to excel :)

Friday, 30 September 2016

Wheelchair Fashion: Autumn Pinup

I am so happy it's Autumn. I LOVE Autumn clothes, I love the colours, the patterns, the makeup, the food, the weather & most importantly the fact I don't have to shave my legs anymore lol.
I'm not as happy that the light is harder to take photos in but I'm working with it :)

So these clothes are from Miss Candyfloss, there's this new collection from them (the librarian collection) that's absolutely stunning & incredibly autumn-y & perfect......I wish more of it would work for me because it really is beautiful.

This skirt (from Miss Candyfloss, 80 euros in sizes XS-3XL) is totally my favourite part of the collection, so far anyway. It is unbelievably stunning, this amazing heavy embroidered top layer over a softer, satin-y under layer.
There is no stretch in the skirt so it's a good idea to get the exact right size, I think it runs a little small, it didn't fasten up on me but that might be because I'm bloated :) Also, with the overlay being such a thick fabric you end up with quite a bulky waistband. It's not too noticeable if you wear a wide belt over it but if you don't have one or like wide belts it could ruin the silhouette a bit...
It's described as a skirt for bad hair days, something that draws attention & it totally is that. It is a total show stopper, only bested for me by this top.

I am 100% in love with this top (Miss Candyfloss, 52.50 euros, XS-5XL) . More like 200% in love. I did not know it was possible to love a top as much as I love this one. At some point when I feel more confident with my body I'm going to do an outfit post that shows quite how amazing this top makes my body look, I honestly felt sexy which is not common feeling for me/ I mean it never was a common feeling for me but I have definitely not felt sexy since I got sick. Pretty, well dressed, confident but never sexy. I'm not sure why but I kind of want to cry, my body confidence has been at an all time low recently (it always is when I gain weight around my face) so to feel sexy despite that was totally amazing.
I wish the top was still available in more colours in my size because I adore it. I would totally buy one (or more) in every colour.

I just realised that this is sounding like an advert for Miss Candyfloss, it's seriously not :)

The only things I can think to add to this post are a rant about what's going on with me which I'm not doing (mostly because I'm super boring) or a list of all the things I am loving ATM which I feel deserves a better place than being bungee in at the end of a blog post.... Maybe I'll do a proper once a month round up of the things I'm loving... Could be fun, if I ever have enough energy ^^ Writing the blog posts I do write is a mega push as it is at the moment. I think it's just with the last few weeks being so insanely hard (my brothers going back to college/uni has not been a smooth road & that has taken it's toll) but I'm not sure.
Are there any types of posts you guys would like to see more of?