Friday, 24 April 2015

Wheelchair Fashion: Floral Princess


You guys may remember that May is M.E. awareness month (Tuesday the 12th of May is M.E. awareness day). M.E. is a very misunderstood condition & we often have to raise awareness ourselves of our symptoms & the realities of our condition.
One such awareness campaign is the Team Princess campaign & this year I will be doing 'Princess' ootds for the whole of May (today included ^^). If you want to learn more about the campaign this post & this facebook page are a good starting place & this is the just giving page that has been set up.


Now the house keeping is out of the way lol, how pretty is this outfit? I LOVE this dress & I am so so happy to be wearing it again! And I love wearing it in this faux skirt style with the shirt tucked into the belt, it's a great way to make a dress more versatile. I feel like this is a SUPER princess-y outfit. Classic, understated but super elegant & feminine...obviously the purple hair is not exactly Kate Middleton princess but maybe it's slightly more animated princess or something?
Blogger Tricks

Friday, 17 April 2015

Wheelchair Fashion: Sunshine Madness


At the beginning of last week I had a random good period - I was full of energy (not normal people full but better than I'd been for at least 8 months), I wasn't getting kick back from doing things, I wasn't sensitive to the things I usually am - & I felt untouchable, I thought I could do anything!
I went out two days in a row in proper clothes, makeup etc with no sunglasses & drank real lemonade (one of my huge sensitivities is citrus acids). It was magical, like all those 'if I was better for one day' daydreams people have & it felt like it would last forever...


Obviously it didn't...looking back the choices I made were dumb & I used up a lot of energy really fast but it was like I was floating on something & reality was a long long way a way & all around me were bubbles & sunshine & the magical feeling of not being exhausted or in pain. I forget how...heavy having M.E. is & when even a portion of that is lifted away it is hard to remember to walk with your feet touching the floor ^^

Anyway, the outfit...

Friday, 10 April 2015

Wheelchair Fashion: Spots, Crochet & Golden Balloons


Totally randomly my energy seems to have balanced itself out. M.E. has serious problems with logic or doing things in a way that it is possible to understand.

I have definitely possibly been running myself a little hard making the most of the extra energy, the sunny weather & the fact that my brother is home from Uni. I left the house two days in a row in proper clothes, with makeup on having done my hair! A week ago (even the day before) I would have struggled to do any one of those things even once, M.E. is a weird weird condition.

Friday, 3 April 2015

Wheelchair Fashion: Easter Casual


My gosh has this week passed in a blur of 'huh?'. I literally didn't know today was Easter until a couple of hours ago - good thing I don't buy Easter eggs - & thought today was Wednesday, meaning I still had days to write this post, right up until that moment so this is going to be short & sweet. (Meaning short, possibly incoherent but full of pictures cause I've already edited those ^^)

Friday, 20 March 2015

Wheelchair Fashion: Jet Set Eleganza Realness

Hieee, I'm back ladies & all things being equal I don't feel too much worse for wear (although I filled out a form on Monday & was wiped for the rest of the day, screens, focusing & logic are a total beeyatches).

Anyway I've been watching A LOT of RuPaul's Drag Race during the flare - it's been pretty much the only TV I could cope with without getting over tired - including the new season & I have been gagging to do a drag OOTD post for you all.
Well here I am doing a look inspired by the runway challenge the queens had to do at the end of the second episode of the new season.


The challenge was 'Jet Set Eleganza' & I had to wonder if a single one of these queens had ever been on a plane because

Friday, 13 March 2015

.....and the elastic snapped

I'm so sorry I haven't posted recently, & may not post 'normally' for another week at least.

Last week Thursday I had a little dip, nothing unusual, just a little more tired than I expected to be. I'd been a little more tired than I expected to be all week though so it didn't bother me but I reconned I should spend the day in my room (it's way quieter there).
By Friday I was the worst I had ever been. It was like an elastic band snapped & I was flung backwards. I was bedbound, in huge amounts of pain & - for much of the day - incoherent or unable to speak. Three days later I got out of bed for the first time & was too tired to stay sat up for more than a few hours (it weirds 'normals' out but sitting? uber tiring activity).

Now a week later I am still getting 8 or 9 level pain every day, I am having to wear noise cancelling headphones & sunglasses 60%-90% of the time, I can't watch tv for more than an hour or so at a time  & it can't be anything new, I'm struggling with anything logical (I thought 2 + 0 + 0 + 0 = 2000 this morning...which would be nice) and I can manage the stairs, on my hands & knees, a maximum of twice a day....which is making it interesting r.e. going to the bathroom (tmi I know but I have to talk it through & where better to do that than on the internet for the whole world to see?)


So, anyway, blogging will be on the back burner for the moment until I get things a little more under control. I will still post when I can but it may not be especially regularly.
If anyone has ideas for low energy posts I would love any advice I can get, I was thinking maybe a Q & A post so if anyone has questions please leave them in the comments, on twitter or on instagram.

Thank you for being so understanding & hopefully things will be back to 'normal' in a week or two.

Tuesday, 3 March 2015

Tattoo Mini Series: Watercolour snowflakes


On the 10th of February I got my 3rd tattoo.
I am totally in love with water colour tattoos & have been since I started seriously looking to get tattoos. I love the way watercolours looks in general & in tattoos it's mind blowing! The way it looks almost like it should be painted on but that it's done with needles, unbelievable! I have total respect for tattoo artists who specialise in this style, they are mind-blowingly talented.


This tattoo was done by Charlotte Timmons

Friday, 27 February 2015

Wheelchair Fashion: Tea & BBQ


I was so excited for spring....right up until I remembered that meant that I probably wasn't going to be wearing some of my darker coloured clothes for a few months. Suddenly I was all nostalgic for burgundies & navies & a whole but load of black (although I don't wear that much black...).

So when my brother dragged us clothes shopping (he bought 4 plain t-shirts) I ended up putting on this outfit.

Friday, 20 February 2015

Wheelchair Fashion: Tattooed Countrygirl


This half term is kicking my ASS! On Sunday I had a whole day of powerchair football & there were only four players there from my team most of the time so I had to play the whole time. Since I'm the oldest on my team I do a lot of the organising (a.k.a. I sit in defence & shout at the kids in attack to remind them what they are doing & what the rules are).......all in all it was a crazy draining day, even before I include the yellow card I got.
Then it was half term & my foster brother has been there 24/7 which is a lot more tiring than I remembered, I think because my brother isn't home to take up any of the slack.


Anyway, outfit photos. This is the outfit I wore to get my new tattoo done,

Monday, 16 February 2015

Tattoo Mini Series: Chronically Ill & Tattooed


I'm not 100% on how to go about writing this post.

There are so many misconceptions about getting tattoos & the tattoo process that I want to dispel & things I need to talk about regarding M.E. & getting tattooed that it seems like this post is going to be very dense & crowded & that's not at all what I want.

I think I'm going to start with the process of getting tattooed...

Firstly (& most importantly) you need to find an artist with a style you like that does that kind of work you are thinking of getting done. This part took me YEARS but instagram definitely makes it simpler for spoonies than it could be (I wouldn't like to have to physically go to shops to look through an artists portfolio).


There are almost as many styles of tattoo as there are artists - old school, new school, Chinese, tribal, painterly, water colour, photo realism, line work, black & grey, dot work.... - so it can be overwhelming trying to search for artists.