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Friday 27 February 2015

Wheelchair Fashion: Tea & BBQ


I was so excited for spring....right up until I remembered that meant that I probably wasn't going to be wearing some of my darker coloured clothes for a few months. Suddenly I was all nostalgic for burgundies & navies & a whole but load of black (although I don't wear that much black...).

So when my brother dragged us clothes shopping (he bought 4 plain t-shirts) I ended up putting on this outfit.


Friday 20 February 2015

Wheelchair Fashion: Tattooed Countrygirl


This half term is kicking my ASS! On Sunday I had a whole day of powerchair football & there were only four players there from my team most of the time so I had to play the whole time. Since I'm the oldest on my team I do a lot of the organising (a.k.a. I sit in defence & shout at the kids in attack to remind them what they are doing & what the rules are).......all in all it was a crazy draining day, even before I include the yellow card I got.
Then it was half term & my foster brother has been there 24/7 which is a lot more tiring than I remembered, I think because my brother isn't home to take up any of the slack.


Anyway, outfit photos. This is the outfit I wore to get my new tattoo done,

Monday 16 February 2015

Tattoo Mini Series: Chronically Ill & Tattooed


I'm not 100% on how to go about writing this post.

There are so many misconceptions about getting tattoos & the tattoo process that I want to dispel & things I need to talk about regarding M.E. & getting tattooed that it seems like this post is going to be very dense & crowded & that's not at all what I want.

I think I'm going to start with the process of getting tattooed...

Firstly (& most importantly) you need to find an artist with a style you like that does that kind of work you are thinking of getting done. This part took me YEARS but instagram definitely makes it simpler for spoonies than it could be (I wouldn't like to have to physically go to shops to look through an artists portfolio).


There are almost as many styles of tattoo as there are artists - old school, new school, Chinese, tribal, painterly, water colour, photo realism, line work, black & grey, dot work.... - so it can be overwhelming trying to search for artists.

Friday 13 February 2015

Everyday Fashion: Roses are grey, Snowflakes are blue


I feel like a genius for coming up with this name ^^ I am such a dork.

I had totally forgotten that valentines day was coming up (it's not really a big deal in my world) so it is a total coincidence that this outfit is kind of valentines-y. It's a great look to rock though if you have casual plans for valentines day....or any other day for that matter, and look no stripes ^^

Friday 6 February 2015

Wheelchair Fashion: Frozen 60s


I hadn't realised until I started editing these pictures how many of my outfits recently have included stripes, my next outfit will either be all stripes or no stripes ^^

Tuesday I looked out of my window & saw bright sunshine & thought 'oh good, the weather is picking up' so out came my most 'spring is about to spring' outfit (a.k.a. a light weight jumper, no layers & no coat) & got my mum to load up the car....


That is ice all around the water spout btw, it may have been sunny but the weather had not picked up & it was NOT as warm as it looked.
Lets just say I was out taking photos for less time than it had taken me to get my shoes on & A LOT less time than it had taken me to put my makeup on ^^

In my head this is kind of a 60s fashion meets Parisian meets modern nautical-ish spring fashion...making it a very convoluted vision for such a simple 'I wish it was spring already' outfit.


I am so ready for spring. I am over jumpers & layers & cold weather & super ready for pretty summer dresses, spring flowers & warm sunny days with just a touch of a breeze....only one of which is really a part of a Yorkshire spring lmao.

Tuesday 3 February 2015

My Weirdest M.E. Symptoms



On Sunday as I sat in near total darkness, with my sunglasses on eating my tea with my hands I started to think how utterly ridiculous some of my symptoms are; how funny, embarrassing or just plain weird the things my body does when it gets tired really are.
And then I realised that I've never heard anyone else talk about some of the symptoms I have. It could be that they are unique to me - everyone's body reacts differently after all - or it could be that there are other people out there with some, or all, of these symptoms & that this post will help them.
Either way it is supposed to be kind of funny so feel free to laugh, I do ^^

So in no particular order....

 

Dropping Everything


I don't know if this counts as a weird symptom so much as a super frustrating one but yeah, recently I have been dropping EVERYTHING, I am so lucky that my phone seems to be invincible because it should be very broken by now.

Excessive Frustration


When I get very tired the tiniest things can make me insanely frustrated. I can go from 0 to wanting to scream & cry & break something because there's nothing worth watching on TV or because a blog post I has finished has vanished (that one's not totally irrational but nearly).

 

Not Being Able to put Images To Words


So if someone is saying what would you like for lunch, we have x, y & z.... First that would over load my brain & I wouldn't be able to remember it all but also the words would be jibberish because I probably wouldn't be able to picture x, y or z so I would struggle to know what they were...
Weirdly I don't get the same amount of sensory overload with pictures, the opposite of the way I was before M.E.

Brain Fart Spasms


Okay...you know when someone really annoys you & you wish you could slap them but obviously you can't because that would be weird? Well sometimes my body slaps them anyway without my permission... It also does less violent stuff but that's the one which is most 'rational' & therefore easiest to explain. This can be very funny because it is often timed perfectly by my body. (I rarely actually hurt anyone with this symptom, my family is used to it & can generally see it coming...plus I'm not strong enough to really hurt anyone anymore).

Freakishly Good Night Vision


Most M.E. sufferers have some form of light sensitivity which gets worse as they get more exhausted. This is where my super power comes from, I can see pretty much like the lights are on until there is no light at all....which is a situation I've never been in so I may even be able to see then. I won't be donning a skin tight suit anytime soon (for oh so many reasons) but when I do it will be as 'ate all her carrots girl' (copy right pending).

Crazy Vivid Dreams


 I know I'm not alone in this one, I get super vivid dreams. Dreams so vivid that I am more exhausted when I wake up from them than I was when I went to sleep. Sometime these dreams are benign - just exhausting & confusing - but more often than not they are terrifying & make getting back to sleep nearly impossible.
If I had any ability to draw however I would be able to make a lot off of the way Dream world Leeds looks, that place is WEIRD.

Confusion


I get very confused when I get tired (and sometimes when I'm not) by very ordinary things. Sometimes I forget where I am & who I am, sometimes I won't be able to understand what people are saying & sometimes I'll be trying to eat something & the texture will confuse my brain so much I won't be able to eat it. I literally can't eat soup anymore because I get so confused by the texture & the fact that I am eating but not chewing... (my brain has issues).

Resting Bitch Face


The more exhausted I get the more miserable I look & the more miserable I look the colder I look (apparently).

Skin Tightening


When I am exhausted my skin will get really tight, like it's dehydrated but the skin is actually fine. I sometimes wonder if my face is actually swelling but that's normally when I'm Drunk Tired.

Drunk Tired


Drunk Tired is when I get giddy with exhaustion & start acting drunk. I have been known to giggle uncontrollably, sing random nursery rhymes, make very weird comments & hallucinate. I usually don't remember this bit of being tired but it is apparently very funny to watch.

Temperature


My temperature control is messed up. I obviously get very cold (quite normal with M.E.) but I can also get very hot or feel a totally normal temperature when everyone else is struggling with the excess of temperature either way. I have also been known to be freezing in one part of my body & too hot in another part....

Swearing


I occasionally swear uncontrollably, a.k.a. I am not telling my mouth to swear but it is doing it anyway. I also swear a lot more than I am comfortable with day to day & I'm not quite sure where it is coming from...

So there are my weirdest M.E. symptoms...what are the weirdest things your body (spoonie or not) does?